dimecres, 20 de gener del 2016

Let Patients Help! (3)

"e-Patient Dave" deBronkart & Dr Danny Sands. Let Patients Help! CreateSpace Independent Publishing Platform. 2013 (p 67)


e-Patient Dave


e-patient:

  • empowered
  • engaged
  • equipped
  • enabled
  • educated
  • expert
We're all talking about patients as if they're someone who's not in the room (p 3)

The most under-used resource in health & care....the most under-used member of the healthcare team (p 5)

Clarity is power (p 15)

Patients and families (p 19)

...scientists have their priorities and patients have theirs (p 21) ...because sicientists usually consider in thier job to know what's important (p 35)

Let patients help set research priorities: what do you want reasearchers to seek?
  • Deeper understanding of why it's happening? Science -knowledge.
  • Symptom relief: engineering.
  • Innovation


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